On July 13th, 2011, Robbie and Serenity Andrews (along with their dog Nola) are setting out to raise awareness about Aplastic Anemia along the Appalachian Trail - all the way from Maine to Georgia. Last fall their brother was diagnosed with Aplastic Anemia and now they want to help others who are facing the same thing.  

What is Aplastic Anemia?

Aplastic anemia is a life-threatening bone marrow failure disease that strikes approximately 1 in 3 million Americans yearly.  When your bone marrow fails, your body stops producing enough of all three types of blood cells and your blood count can go down at an alarming rate.  Without enough blood, your heartbeat becomes irregular, your heart becomes enlarged, and you become extremely susceptible to infections and to internal bleeding.  Eventually your heart will fail completely. 

There is so much that is still unknown about Aplastic Anemia, including what usually causes it.  Aplastic Anemia can strike any age, any gender, any race.  One day you could be fine and the next day you could be rushed to the emergency room with Severe Aplastic Anemia.  That is what happened to their 27 year old brother, Jordan Sielaff. 

A lot of progress has been made toward the treatment of this disease and because of that progress Jordan Sielaff is alive today.  However, there is still fundamental research that needs to be done, and because it is such a little-known disease there is not a lot of funding for it.  Those who are told that they have Aplastic Anemia have usually never heard about the disease before and there is a lot of fear and uncertainties involved for them and their loved ones.  AA&MDSIF is dedicated to supporting patients and families living with aplastic anemia by providing answers, support and hope to thousands of patients and their families around the world as well as providing funding for the research of Aplastic Anemia and related bone marrow failure diseases.

Robbie and Serenity have a goal to raise $5 for each mile they hike.  All donations go directly to AA&MDS (Aplastic Anemia & MDS International Foundation) and are tax-deductible.  AA&MDS spends 80% of its' annual budget directly on programs.  They have received a 4-star rating from Charity Navigator (America's largest independent evaluator of charities) for the last six years in a row.

If you would like to donate, please go to: http://www.firstgiving.com/fundraiser/4AHike/AplasticAnemiaMDSInternationalFoundationInc
My brother Jordan with his daughter Gabrielle

Jordan Sielaff with his daughter, Gabbie. To read more of Jordan's story, go to: http://www.help4jordan.org/2010/09/13/from-jordan-my-aplastic-anemia



To find out more about AA&MDSIF, go to: http://www.AAMDS.org 


This free website was made using Yola.

No HTML skills required. Build your website in minutes.

Go to www.yola.com and sign up today!

Make a free website with Yola